{"id":2,"date":"2023-07-09T16:29:35","date_gmt":"2023-07-09T16:29:35","guid":{"rendered":"https:\/\/ulyssesdmd.study\/?page_id=2"},"modified":"2026-05-11T23:34:51","modified_gmt":"2026-05-11T23:34:51","slug":"home","status":"publish","type":"page","link":"https:\/\/ulyssesdmd.study\/es-es\/","title":{"rendered":"Home"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;HERO SECTION&#8221; _builder_version=&#8221;4.21.0&#8243; background_image=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/sky-sun-birds-bkg.jpg&#8221; background_size=&#8221;custom&#8221; background_position=&#8221;bottom_left&#8221; background_horizontal_offset=&#8221;18%&#8221; background_vertical_offset=&#8221;10%&#8221; custom_padding=&#8221;110px||||false|false&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; background_last_edited=&#8221;on|tablet&#8221; background_size_tablet=&#8221;initial&#8221; background_size_phone=&#8221;initial&#8221; background_image_height_tablet=&#8221;60%&#8221; background_position_tablet=&#8221;bottom_left&#8221; background_horizontal_offset_tablet=&#8221;35%&#8221; background_vertical_offset_tablet=&#8221;20%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_right&#8221; background_blend=&#8221;screen&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;95px||||false|false&#8221; custom_padding_tablet=&#8221;95px||||false|false&#8221; custom_padding_phone=&#8221;40px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; background_enable_image=&#8221;off&#8221; background_blend=&#8221;soft-light&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;53px&#8221; header_letter_spacing=&#8221;0.02em&#8221; header_line_height=&#8221;56px&#8221; custom_margin=&#8221;||12px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; header_font_size_tablet=&#8221;53px&#8221; header_font_size_phone=&#8221;31px&#8221; header_font_size_last_edited=&#8221;on|phone&#8221; header_line_height_tablet=&#8221;56px&#8221; header_line_height_phone=&#8221;33px&#8221; header_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>CONTACTA. S\u00daMATE.<br \/>\nUNAMOS FUERZAS<br \/>\n<span class=\"orange medium\">PARA COMBATIR LA DMD.<span><\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;||||||||&#8221; text_text_color=&#8221;#1E8C8E&#8221; text_line_height=&#8221;30px&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;54px&#8221; custom_padding=&#8221;||2em||false|false&#8221; custom_padding_tablet=&#8221;||0em||false|false&#8221; custom_padding_phone=&#8221;||0em||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;22px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;30px&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Informaci\u00f3n acerca de nuestro estudio de investigaci\u00f3n <br \/>sobre la distrofia muscular de Duchenne (DMD)<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; 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admin_label=&#8221;STUDY OVERVIEW SECTION&#8221; module_id=&#8221;STUDY-OVERVIEW&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#1E8C8E&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||true|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Descripci\u00f3n general del estudio<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;WHAT IS THE ULYSSES STUDY&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;150px||50px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfDE QU\u00c9 TRATA EL ESTUDIO ULYSSES?<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;2_5,3_5&#8243; make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;0px||150px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;88%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Este estudio est\u00e1 dirigido <span class=\"no-break-words\">a personas<\/span> que, como t\u00fa, tienen distrofia muscular de Duchenne (DMD) <span class=\"no-break-words\">y, como<\/span> no pueden caminar sin ayuda, usan la silla de ruedas para moverse.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_3_font_size_tablet=&#8221;25px&#8221; header_3_font_size_phone=&#8221;23px&#8221; header_3_font_size_last_edited=&#8221;on|phone&#8221; header_3_line_height_tablet=&#8221;&#8221; header_3_line_height_phone=&#8221;&#8221; header_3_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>En nuestro video podr\u00e1s informarte mejor sobre el estudio:<\/h3>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; 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custom_padding=&#8221;150px||150px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfC\u00f3mo funciona el givinostat?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>La DMD est\u00e1 causada por alteraciones (mutaciones) en el gen de la DMD, que contiene instrucciones para que las c\u00e9lulas produzcan distrofina, una prote\u00edna importante para la salud muscular que evita que los m\u00fasculos se desgasten con el movimiento. Las mutaciones en el gen de la DMD hacen que el organismo produzca menos cantidad de distrofina. Sin esta prote\u00edna, los m\u00fasculos se pueden da\u00f1ar con el tiempo <span class=\"no-break-words\">y acabar<\/span> siendo reemplazados por tejido cicatricial (fibrosis) <span class=\"no-break-words\">y grasa<\/span>, lo que deriva en el debilitamiento <span class=\"no-break-words\">y el deterioro<\/span> de los m\u00fasculos.<\/p>\n<p>El givinostat bloquea unas enzimas conocidas como histonas desacetilasas (HDAC), que frenan la actividad gen\u00e9tica <span class=\"no-break-words\">y pueden<\/span> afectar <span class=\"no-break-words\">a la capacidad<\/span> de las c\u00e9lulas musculares de autorrepararse (regeneraci\u00f3n). Al bloquear las HDAC, el givinostat podr\u00eda reducir la fibrosis<span class=\"no-break-words\">y el deterioro<\/span> muscular y ayudar <span class=\"no-break-words\">a las c\u00e9lulas<\/span> musculares <span class=\"no-break-words\">a regenerarse<\/span>.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;LOCALICE UN CENTRO DEL ESTUDIO&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#1E8C8E&#8221; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#1E8C8E&#8221; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; 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_module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||true|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>La participaci\u00f3n en el estudio<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHO CAN TAKE PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/globe-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/globe-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;45%&#8221; background_vertical_offset_phone=&#8221;-16%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>El estudio se divide en tres partes principales:<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;50%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>En el estudio participar\u00e1n unos 138 chicos en centros de investigaci\u00f3n de todo el mundo.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_3_font_size_tablet=&#8221;25px&#8221; header_3_font_size_phone=&#8221;23px&#8221; header_3_font_size_last_edited=&#8221;on|phone&#8221; header_3_line_height_tablet=&#8221;&#8221; header_3_line_height_phone=&#8221;&#8221; header_3_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Los participantes deben cumplir los siguientes requisitos:<\/h3>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;61%&#8221; max_width_tablet=&#8221;61%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Varones de entre 9 <span class=\"no-break-words\">y 17 a\u00f1os<\/span> (en el momento de inicio del estudio)<\/li>\n<li>Diagn\u00f3stico gen\u00e9tico de distrofia muscular de Duchenne (DMD)<\/li>\n<li>No deambulantes (uso habitual de la silla de ruedas para desplazarse)<\/li>\n<li>Tratamiento con dosis estable de corticoides sist\u00e9micos durante al menos los \u00faltimos 6 meses (como prednisona, prednisolona <span class=\"no-break-words\">o deflazacort)<\/span><\/li>\n<li>Ninguna genoterapia anterior para la DMD<\/li>\n<li>Ninguna exposici\u00f3n <span class=\"no-break-words\">a productos<\/span> de restauraci\u00f3n de la distrofina (como atalureno, Viltepso, Exondys 51, Vyondys 53 <span class=\"no-break-words\">o Amondys 45)<\/span> en los \u00faltimos 6 meses<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;||||||||&#8221; text_text_color=&#8221;#1E8C8E&#8221; text_line_height=&#8221;30px&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;54px&#8221; custom_padding=&#8221;||1em||false|false&#8221; custom_padding_tablet=&#8221;||0em||false|false&#8221; custom_padding_phone=&#8221;||0em||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;22px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;30px&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Se comprobar\u00e1n los antecedentes m\u00e9dicos <span class=\"no-break-words\">y otros<\/span> criterios para determinar la idoneidad.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;LOCALICE UN CENTRO DEL ESTUDIO&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#ED7A23&#8243; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#ED7A23&#8243; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;#FFFFFF&#8221; button_bg_enable_color__hover=&#8221;on&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#ED7A23&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;HOW DOES THE STUDY WORK&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfEn qu\u00e9 consiste el estudio?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;68%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;95%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]Este estudio tiene una duraci\u00f3n aproximada de un a\u00f1o <span class=\"no-break-words\">y medio<\/span>, durante el cual se debe acudir <span class=\"no-break-words\">a unas<\/span> 14 visitas al centro del estudio.[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_font_size=&#8221;20px&#8221; text_line_height=&#8221;24px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"study-chart-container\">\n<div class=\"row-1\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">1<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">PERIODO DE SELECCI\u00d3N<\/strong><br \/>\n(hasta 1 mes \u00b1 14 d\u00edas)<\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">Revisaremos tus antecedentes m\u00e9dicos <span class=\"no-break-words\">y te haremos<\/span> pruebas en el transcurso de 3 visitas para confirmar que puedes participar en el estudio. Entre las pruebas se incluyen an\u00e1lisis de sangre, pruebas funcionales respiratorias <span class=\"no-break-words\">y card\u00edacas<\/span> <span class=\"no-break-words\">y pruebas<\/span> de fuerza <span class=\"no-break-words\">y movimiento.<\/span><\/div>\n<\/div>\n<\/div>\n<div class=\"row-2\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">2<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">TRATAMIENTO DEL ESTUDIO<\/strong><br \/>\n(18 meses)<\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">\n<p>Si superas la selecci\u00f3n, pasar\u00e1s al periodo de tratamiento del estudio y te asignaremos al azar uno de dos tratamientos: el medicamento en investigaci\u00f3n (givinostat) o un placebo (sustancia sin ning\u00fan principio activo).<\/p>\n<p>Tendr\u00e1s una probabilidad de 2 entre 3 de recibir el medicamento en investigaci\u00f3n y una probabilidad de 1 entre 3 de recibir el placebo. Tomar\u00e1s el tratamiento del estudio dos veces al d\u00eda durante unos 18 meses. Acudir\u00e1s al centro del estudio acompa\u00f1ado de tu padre, madre o tutor en unas 10 ocasiones para que te hagan otras pruebas y procedimientos del estudio.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"row-optional\">\n<div class=\"col-1\">\n<p><strong class=\"title\">ESTUDIO OPCIONAL DE SEGURIDAD A LARGO PLAZO:<\/strong><\/p>\n<p>Si completas el periodo de tratamiento del estudio, te invitaremos a incorporarte a un estudio de seguridad a largo plazo en el que tomar\u00edas givinostat hasta que el tratamiento est\u00e9 comercialmente disponible. Durante el estudio de seguridad a largo plazo, todos los participantes tomar\u00e1n givinostat, incluso los que previamente hayan recibido el placebo.<\/p>\n<\/div>\n<\/div>\n<div class=\"row-3\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">3<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">VISITA DE SEGUIMIENTO<\/strong><\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">Aproximadamente 1 mes (\u00b17 d\u00edas) despu\u00e9s de tomar la \u00faltima dosis de medicamento del estudio, volver\u00e1s junto con tu padre, madre o tutor al centro del estudio para que comprobemos tu estado de salud.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHY JOIN&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/doc-patient-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/doc-patient-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;42%&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;bottom_right&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfPor qu\u00e9 deber\u00eda participar en el estudio?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;62%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]La DMD es una enfermedad poco frecuente progresiva, debilitante <span class=\"no-break-words\">y potencialmente<\/span> mortal para la que existe una necesidad acuciante de nuevos tratamientos eficaces <span class=\"no-break-words\">y con<\/span> buena tolerabilidad para las personas que la sufren. Al participar en este estudio cl\u00ednico, tu DMD podr\u00eda <span class=\"no-break-words\">o no mejorar<\/span>. Sin embargo, creemos que podr\u00eda tener, entre otros, los siguientes beneficios:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;1.6em&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;62%&#8221; max_width_tablet=&#8221;57%&#8221; max_width_phone=&#8221;100%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>La posibilidad de participar en una investigaci\u00f3n dirigida a personas con DMD que no pueden caminar, ya que no hay disponibles muchos tratamientos eficaces<\/li>\n<li>El seguimiento estrecho de tu salud por un equipo m\u00e9dico profesional<\/li>\n<li>La oportunidad de contribuir a ampliar el conocimiento que tenemos sobre la DMD<\/li>\n<li>La posibilidad de ayudar a otras personas con DMD<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;LOCALICE UN CENTRO DEL ESTUDIO&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#E43C2F&#8221; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#E43C2F&#8221; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;#FFFFFF&#8221; button_bg_enable_color__hover=&#8221;on&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#E43C2F&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;ARE THERE RISKS&#8221; module_id=&#8221;TAKING-PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/orange-fuschia-bkg.jpg&#8221; background_position=&#8221;top_right&#8221; background_vertical_offset=&#8221;50%&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; background_last_edited=&#8221;on|phone&#8221; background_size_tablet=&#8221;custom&#8221; background_image_height_tablet=&#8221;110%&#8221; background_image_height_phone=&#8221;105%&#8221; background_horizontal_offset_tablet=&#8221;15%&#8221; background_horizontal_offset_phone=&#8221;20%&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;75px||75px||false|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;50px||35px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;34px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfEl estudio conlleva alg\u00fan riesgo?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;85%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]Puede haber riesgos asociados <span class=\"no-break-words\">a la administraci\u00f3n<\/span> del medicamento en investigaci\u00f3n. En el documento de consentimiento informado podr\u00e1 encontrar m\u00e1s informaci\u00f3n sobre los riesgos, los efectos secundarios, las molestias <span class=\"no-break-words\">y los inconvenientes<\/span> relacionados con el estudio, que tambi\u00e9n le explicar\u00e1 el m\u00e9dico del estudio.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;75px||75px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;35px||70px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;34px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfEstoy obligado a participar en el estudio?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;77%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>No, la participaci\u00f3n en un estudio cl\u00ednico es totalmente voluntaria, as\u00ed que no tienes que inscribirte en el estudio.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;ABOUT CLINICAL STUDIES&#8221; module_id=&#8221;ABOUT-CLINICAL-STUDIES&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#75bd43&#8243; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||false|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Acerca de los estudios cl\u00ednicos<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHAT IS A CLINICAL STUDY&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/science-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/es-es\/wp-content\/uploads\/2023\/07\/science-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; parallax_phone=&#8221;off&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;32%&#8221; border_width_bottom=&#8221;15px&#8221; border_color_bottom=&#8221;#FFFFFF&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;bottom_right&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;150px||150px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfQu\u00e9 es un estudio de investigaci\u00f3n cl\u00ednica?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]Los estudios de investigaci\u00f3n est\u00e1n dise\u00f1ados para ayudarnos <span class=\"no-break-words\">a obtener<\/span> m\u00e1s informaci\u00f3n sobre productos sanitarios, medicamentos <span class=\"no-break-words\">o pruebas<\/span> de diagn\u00f3stico. Los resultados de los estudios cl\u00ednicos ayudan <span class=\"no-break-words\">a las autoridades<\/span> sanitarias <span class=\"no-break-words\">a decidir<\/span> si un medicamento en investigaci\u00f3n puede ponerse <span class=\"no-break-words\">a disposici\u00f3n<\/span> de los pacientes de un pa\u00eds concreto.[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;1em||||false|false&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u00bfC\u00f3mo se protegen mis derechos?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]Todos los estudios cl\u00ednicos son revisados por un comit\u00e9 de \u00e9tica de la investigaci\u00f3n con medicamentos (CEIm), lo que contribuye <span class=\"no-break-words\">a garantizar<\/span> que se lleven a cabo de manera segura <span class=\"no-break-words\">y que se<\/span> protejan los derechos <span class=\"no-break-words\">y la privacidad<\/span> de los participantes. Los estudios de investigaci\u00f3n los llevan <span class=\"no-break-words\">a cabo<\/span> profesionales m\u00e9dicos cualificados <span class=\"no-break-words\">y con experiencia<\/span> que supervisan la salud de los participantes durante el estudio.[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;LOCALICE UN CENTRO DEL ESTUDIO&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#75BD43&#8243; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#75BD43&#8243; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;#FFFFFF&#8221; button_bg_enable_color__hover=&#8221;on&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#75BD43&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>CONTACTA. S\u00daMATE. UNAMOS FUERZAS PARA COMBATIR LA DMD.Informaci\u00f3n acerca de nuestro estudio de investigaci\u00f3n sobre la distrofia muscular de Duchenne (DMD)Descripci\u00f3n general del estudio\u00bfDE QU\u00c9 TRATA EL ESTUDIO ULYSSES?Este estudio est\u00e1 dirigido a personas que, como t\u00fa, tienen distrofia muscular de Duchenne (DMD) y, como no pueden caminar sin ayuda, usan la silla de ruedas [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<!-- wp:paragraph -->\r\n<p>This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this:<\/p>\r\n<!-- \/wp:paragraph --><!-- wp:quote -->\r\n<blockquote class=\"wp-block-quote\">\r\n<p>Hi there! I'm a bike messenger by day, aspiring actor by night, and this is my website. I live in Los Angeles, have a great dog named Jack, and I like pi\u00f1a coladas. (And gettin' caught in the rain.)<\/p>\r\n<\/blockquote>\r\n<!-- \/wp:quote --><!-- wp:paragraph -->\r\n<p>...or something like this:<\/p>\r\n<!-- \/wp:paragraph --><!-- wp:quote -->\r\n<blockquote class=\"wp-block-quote\">\r\n<p>The XYZ Doohickey Company was founded in 1971, and has been providing quality doohickeys to the public ever since. Located in Gotham City, XYZ employs over 2,000 people and does all kinds of awesome things for the Gotham community.<\/p>\r\n<\/blockquote>\r\n<!-- \/wp:quote --><!-- wp:paragraph -->\r\n<p>As a new WordPress user, you should go to <a href=\"https:\/\/ulyssesdmd.study\/es-es\/wp-admin\/\">your dashboard<\/a> to delete this page and create new pages for your content. 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