{"id":2,"date":"2023-07-09T16:29:35","date_gmt":"2023-07-09T16:29:35","guid":{"rendered":"https:\/\/ulyssesdmd.study\/?page_id=2"},"modified":"2024-06-13T20:32:47","modified_gmt":"2024-06-13T20:32:47","slug":"home","status":"publish","type":"page","link":"https:\/\/ulyssesdmd.study\/it-it\/","title":{"rendered":"Home"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;HERO SECTION&#8221; _builder_version=&#8221;4.21.0&#8243; background_image=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/sky-sun-birds-bkg.jpg&#8221; background_size=&#8221;custom&#8221; background_position=&#8221;bottom_left&#8221; background_horizontal_offset=&#8221;18%&#8221; background_vertical_offset=&#8221;10%&#8221; custom_padding=&#8221;110px||||false|false&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; background_last_edited=&#8221;on|tablet&#8221; background_size_tablet=&#8221;initial&#8221; background_size_phone=&#8221;initial&#8221; background_image_height_tablet=&#8221;60%&#8221; background_position_tablet=&#8221;bottom_left&#8221; background_horizontal_offset_tablet=&#8221;35%&#8221; background_vertical_offset_tablet=&#8221;20%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_right&#8221; background_blend=&#8221;screen&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;95px||||false|false&#8221; custom_padding_tablet=&#8221;95px||||false|false&#8221; custom_padding_phone=&#8221;40px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; background_enable_image=&#8221;off&#8221; background_blend=&#8221;soft-light&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;53px&#8221; header_letter_spacing=&#8221;0.02em&#8221; header_line_height=&#8221;56px&#8221; custom_margin=&#8221;||12px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; header_font_size_tablet=&#8221;53px&#8221; header_font_size_phone=&#8221;31px&#8221; header_font_size_last_edited=&#8221;on|phone&#8221; header_line_height_tablet=&#8221;56px&#8221; header_line_height_phone=&#8221;33px&#8221; header_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>NON RESTATE A GUARDARE. UNITEVI A NOI.<br \/>\nINSIEME POSSIAMO<br \/>\n<span class=\"orange medium\">SCONFIGGERE LA DMD.<\/span><\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;||||||||&#8221; text_text_color=&#8221;#1E8C8E&#8221; text_line_height=&#8221;30px&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;54px&#8221; custom_padding=&#8221;||2em||false|false&#8221; custom_padding_tablet=&#8221;||0em||false|false&#8221; custom_padding_phone=&#8221;||0em||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;22px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;30px&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]Scoprite di pi\u00f9 sul nostro studio di ricerca sulla distrofia muscolare di Duchenne.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/people-hero.png&#8221; alt=&#8221;People&#8221; title_text=&#8221;people-hero&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;STUDY OVERVIEW SECTION&#8221; module_id=&#8221;STUDY-OVERVIEW&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#1E8C8E&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||true|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Panoramica dello studio<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;WHAT IS THE ULYSSES STUDY&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;150px||50px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Di cosa si occupa lo studio ULYSSES?<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;2_5,3_5&#8243; make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;0px||150px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;88%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]Stiamo conducendo questo studio per acquisire maggiori informazioni su un farmaco sperimentale chiamato givinostat. Lo studio valuter\u00e0 l\u2019efficacia del farmaco nel ridurre la degenerazione dei muscoli nelle persone affette da distrofia muscolare di Duchenne (DMD).[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_3_font_size_tablet=&#8221;25px&#8221; header_3_font_size_phone=&#8221;23px&#8221; header_3_font_size_last_edited=&#8221;on|phone&#8221; header_3_line_height_tablet=&#8221;&#8221; header_3_line_height_phone=&#8221;&#8221; header_3_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Scoprite di pi\u00f9 sullo studio guardando il nostro video:<\/h3>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div style=\"padding:56.25% 0 0 0;position:relative;\"><iframe src=\"https:\/\/player.vimeo.com\/video\/905440442?h=c3cea5dd4f&amp;badge=0&amp;autopause=0&amp;player_id=0&amp;app_id=58479\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture\" style=\"position:absolute;top:0;left:0;width:100%;height:100%;\" title=\"ULYSSES_Video_v1.0_05Jul2023_Italy Italian\"><\/iframe><\/div>\n<p><script src=\"https:\/\/player.vimeo.com\/api\/player.js\"><\/script>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;HOW DOES GIVINOSTAT WORK&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#6fcaca&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/blobs-bkg.jpg&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_center&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||150px||false|false&#8221; background_color_phone=&#8221;#6fc9c9&#8243; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;41%&#8221; background_vertical_offset_phone=&#8221;0%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;150px||150px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Come agisce givinostat?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>La DMD \u00e8 causata da alterazioni (mutazioni) nel gene DMD, il quale contiene le istruzioni che consentono alle cellule di produrre una proteina chiamata distrofina. La distrofina \u00e8 importante per la salute dei muscoli e contribuisce a prevenirne l\u2019usura e la lacerazione quando ci muoviamo. Eventuali mutazioni nel gene DMD fanno s\u00ec che l\u2019organismo produca una quantit\u00e0 minore di distrofina.<br \/>Senza questa proteina, i muscoli possono danneggiarsi nel corso del tempo ed essere rimpiazzati da tessuto cicatriziale (fibrosi) e grasso, andando incontro a deperimento e indebolimento.<\/p>\n<p>Givinostat blocca degli enzimi chiamati istone deacetilasi (HDAC), che arrestano l\u2019attivit\u00e0 dei geni e possono compromettere la capacit\u00e0 delle cellule muscolari di autoripararsi (rigenerarsi).<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;TROVA UN CENTRO DELLO STUDIO&#8221; _builder_version=&#8221;4.21.0&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#1E8C8E&#8221; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#1E8C8E&#8221; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|desktop&#8221; button_bg_color__hover=&#8221;#FFFFFF&#8221; button_bg_enable_color__hover=&#8221;on&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#1E8C8E&#8221; button_border_color__hover_enabled=&#8221;on|hover&#8221; button_border_color__hover=&#8221;#1E8C8E&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;TAKING PART SECTION&#8221; module_id=&#8221;TAKING-PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ED7A23&#8243; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||true|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>partecipazione allo studio<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHO CAN TAKE PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/globe-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/globe-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;45%&#8221; background_vertical_offset_phone=&#8221;-16%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Di cosa si occupa lo studio ULYSSES?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;50%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Parteciperanno allo studio circa 138 ragazzi presso centri di ricerca in tutto il mondo.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_3_font_size_tablet=&#8221;25px&#8221; header_3_font_size_phone=&#8221;23px&#8221; header_3_font_size_last_edited=&#8221;on|phone&#8221; header_3_line_height_tablet=&#8221;&#8221; header_3_line_height_phone=&#8221;&#8221; header_3_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>I partecipanti idonei devono soddisfare i seguenti requisiti:<\/h3>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;61%&#8221; max_width_tablet=&#8221;61%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>essere di sesso maschile e avere un\u2019et\u00e0 compresa tra 9 e 17 anni (all\u2019inizio dello studio);<\/li>\n<li>aver ricevuto una diagnosi genetica di distrofia muscolare di Duchenne (DMD);<\/li>\n<li>essere non deambulanti (in genere utilizzano la sedia a rotelle per muoversi);<\/li>\n<li>essere in trattamento con una dose stabile di steroidi sistemici (come prednisone, prednisolone o deflazacort) da almeno 6 mesi;<\/li>\n<li>non aver ricevuto alcun trattamento con terapia genica per la DMD;<\/li>\n<li>non essere stati esposti ad alcun prodotto per il ripristino della distrofina (come Ataluren, Viltepso, Exondys 51, Vyondys 53, Amondys 45) negli ultimi 6 mesi.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;||||||||&#8221; text_text_color=&#8221;#1E8C8E&#8221; text_line_height=&#8221;30px&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;54px&#8221; custom_padding=&#8221;||1em||false|false&#8221; custom_padding_tablet=&#8221;||0em||false|false&#8221; custom_padding_phone=&#8221;||0em||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;22px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;30px&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Per valutare l\u2019idoneit\u00e0 allo studio, saranno esaminati anche la storia clinica dei pazienti e altri criteri.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;TROVA UN CENTRO DELLO STUDIO&#8221; _builder_version=&#8221;4.21.0&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#ED7A23&#8243; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#ED7A23&#8243; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;#FFFFFF&#8221; button_bg_enable_color__hover=&#8221;on&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#ED7A23&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;HOW DOES THE STUDY WORK&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Come si svolge lo studio?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;68%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;95%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]Questo studio dura circa un anno e mezzo e prevede circa 14 visite presso il centro dello studio. Lo studio \u00e8 suddiviso in 3 parti principali:[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_font_size=&#8221;20px&#8221; text_line_height=&#8221;24px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"study-chart-container\">\n<div class=\"row-1\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">1<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">PERIODO DI SCREENING<\/strong><br \/>\n(fino a 1 mese \u00b114 giorni)<\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">Sar\u00e0 esaminata la tua storia clinica e verranno condotti alcuni esami nel corso di 3 visite per verificare la tua idoneit\u00e0 a partecipare allo studio. Alcuni di questi esami comprendono prelievi di sangue, prove di funzionalit\u00e0 cardiaca e polmonare e test di forza\/movimento.<\/div>\n<\/div>\n<\/div>\n<div class=\"row-2\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">2<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">TRATTAMENTO DELLO STUDIO<\/strong><br \/>\n(18 mesi)<\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">\n<p>Se verr\u00e0 confermata la tua idoneit\u00e0, entrerai nel periodo di trattamento dello studio e sarai assegnato in maniera casuale a uno dei due trattamenti dello studio: il farmaco sperimentale (givinostat) o il placebo (una sostanza inattiva).<\/p>\n<p>Dovrai tornare insieme al tuo genitore\/tutore presso il centro dello studio circa 10 volte per sottoporti a ulteriori esami e procedure.\n<\/p><\/div>\n<\/div>\n<\/div>\n<div class=\"row-optional\">\n<div class=\"col-1\">\n<p><strong class=\"title\">STUDIO DI SICUREZZA A LUNGO TERMINE FACOLTATIVO<\/strong><\/p>\n<p>Se porterai a termine il periodo di trattamento dello studio, ti inviteremo a partecipare a uno studio di sicurezza a lungo termine, durante il quale prenderai givinostat fino a quando il trattamento non sar\u00e0 disponibile in commercio. Durante lo studio di sicurezza a lungo termine, tutti i partecipanti riceveranno givinostat, anche quelli che in precedenza stavano ricevendo il placebo.<\/p>\n<\/div>\n<\/div>\n<div class=\"row-3\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">3<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">VISITA DI FOLLOW-UP<\/strong><\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">Circa 1 mese (\u00b17 giorni) dopo l\u2019ultima dose di farmaco dello studio, dovrai tornare insieme al tuo genitore\/tutore presso il centro dello studio per un controllo del tuo stato di salute.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHY JOIN&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/doc-patient-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/doc-patient-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;42%&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;bottom_right&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Perch\u00e9 dovrei partecipare allo studio?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>La DMD \u00e8 una malattia rara, progressiva, debilitante e potenzialmente mortale, per la quale esiste un urgente bisogno di nuove terapie che siano efficaci e ben tollerate in tutte le persone che presentano questa condizione. Non \u00e8 detto che la partecipazione a questo studio clinico contribuisca al miglioramento della tua DMD. Tuttavia, riteniamo che alcuni vantaggi possano includere:<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;1.6em&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;57%&#8221; max_width_phone=&#8221;100%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>l\u2019opportunit\u00e0 di contribuire al progresso della ricerca per le persone non deambulanti affette da DMD, dal momento che non sono disponibili molti trattamenti efficaci;<\/li>\n<li>la possibilit\u00e0 di ricevere un attento monitoraggio medico da parte di un\u2019\u00e9quipe di ricerca professionale;<\/li>\n<li>la possibilit\u00e0 di contribuire alle conoscenze attualmente disponibili sulla DMD;<\/li>\n<li>la possibilit\u00e0 di aiutare altre persone affette da DMD.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;TROVA UN CENTRO DELLO STUDIO&#8221; _builder_version=&#8221;4.21.0&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#E43C2F&#8221; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#E43C2F&#8221; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;#FFFFFF&#8221; button_bg_enable_color__hover=&#8221;on&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#E43C2F&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;ARE THERE RISKS&#8221; module_id=&#8221;TAKING-PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/orange-fuschia-bkg.jpg&#8221; background_position=&#8221;top_right&#8221; background_vertical_offset=&#8221;50%&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; background_last_edited=&#8221;on|phone&#8221; background_size_tablet=&#8221;custom&#8221; background_image_height_tablet=&#8221;110%&#8221; background_image_height_phone=&#8221;105%&#8221; background_horizontal_offset_tablet=&#8221;15%&#8221; background_horizontal_offset_phone=&#8221;20%&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;75px||75px||false|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;50px||35px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;34px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Lo studio comporta dei rischi?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;85%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>L\u2019assunzione del farmaco sperimentale pu\u00f2 comportare dei rischi. Maggiori informazioni sui possibili rischi, effetti collaterali, disagi e inconvenienti associati allo studio sono riportate nel modulo di consenso informato e dovranno essere discusse con il medico dello studio.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;75px||75px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;35px||70px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;34px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Sono obbligato a partecipare allo studio?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;77%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>No. La partecipazione a uno studio clinico \u00e8 del tutto volontaria. Non sei obbligato a partecipare allo studio. Anche se entri nello studio, potrai ritirarti in qualsiasi momento.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;ABOUT CLINICAL STUDIES&#8221; module_id=&#8221;ABOUT-CLINICAL-STUDIES&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#75bd43&#8243; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||false|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>INFORMAZIONI SUGLI STUDI CLINICI<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHAT IS A CLINICAL STUDY&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/science-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/it-it\/wp-content\/uploads\/2023\/07\/science-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; parallax_phone=&#8221;off&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;32%&#8221; border_width_bottom=&#8221;15px&#8221; border_color_bottom=&#8221;#FFFFFF&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;bottom_right&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;150px||150px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Che cos\u2019\u00e8 uno studio di ricerca clinica?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Uno studio di ricerca \u00e8 progettato per aiutarci a ottenere maggiori informazioni su dispositivi medici, farmaci o esami diagnostici. Le autorit\u00e0 sanitarie utilizzano i risultati degli studi di ricerca per stabilire se un farmaco sperimentale debba essere reso disponibile per l\u2019uso in un determinato Paese.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;1em||||false|false&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Come vengono tutelati i miei diritti?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Tutti gli studi di ricerca vengono esaminati da una Commissione di revisione istituzionale (IRB) o da un Comitato etico (CE), che aiuta a garantire che lo studio venga condotto in modo sicuro e che i diritti e la riservatezza dei partecipanti vengano tutelati. Gli studi di ricerca vengono condotti da professionisti sanitari qualificati ed esperti che monitorano la salute dei partecipanti per l\u2019intera durata dello studio.<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI2OCJ9fQ==@&#8221; button_text=&#8221;TROVA UN CENTRO DELLO STUDIO&#8221; _builder_version=&#8221;4.21.0&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;20px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#75BD43&#8243; button_border_width=&#8221;2px&#8221; button_border_color=&#8221;#75BD43&#8243; button_border_radius=&#8221;28px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; custom_margin=&#8221;20px||||false|false&#8221; custom_padding=&#8221;12px|24px|12px|24px|true|true&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;#FFFFFF&#8221; button_bg_enable_color__hover=&#8221;on&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#75BD43&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>NON RESTATE A GUARDARE. UNITEVI A NOI. INSIEME POSSIAMO SCONFIGGERE LA DMD.Scoprite di pi\u00f9 sul nostro studio di ricerca sulla distrofia muscolare di Duchenne.Panoramica dello studioDi cosa si occupa lo studio ULYSSES?Stiamo conducendo questo studio per acquisire maggiori informazioni su un farmaco sperimentale chiamato givinostat. Lo studio valuter\u00e0 l\u2019efficacia del farmaco nel ridurre la degenerazione [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<!-- wp:paragraph -->\r\n<p>This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this:<\/p>\r\n<!-- \/wp:paragraph --><!-- wp:quote -->\r\n<blockquote class=\"wp-block-quote\">\r\n<p>Hi there! I'm a bike messenger by day, aspiring actor by night, and this is my website. I live in Los Angeles, have a great dog named Jack, and I like pi\u00f1a coladas. (And gettin' caught in the rain.)<\/p>\r\n<\/blockquote>\r\n<!-- \/wp:quote --><!-- wp:paragraph -->\r\n<p>...or something like this:<\/p>\r\n<!-- \/wp:paragraph --><!-- wp:quote -->\r\n<blockquote class=\"wp-block-quote\">\r\n<p>The XYZ Doohickey Company was founded in 1971, and has been providing quality doohickeys to the public ever since. Located in Gotham City, XYZ employs over 2,000 people and does all kinds of awesome things for the Gotham community.<\/p>\r\n<\/blockquote>\r\n<!-- \/wp:quote --><!-- wp:paragraph -->\r\n<p>As a new WordPress user, you should go to <a href=\"https:\/\/ulyssesdmd.study\/it-it\/wp-admin\/\">your dashboard<\/a> to delete this page and create new pages for your content. Have fun!<\/p>\r\n<!-- \/wp:paragraph -->","_et_gb_content_width":"","footnotes":""},"class_list":["post-2","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/pages\/2","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/comments?post=2"}],"version-history":[{"count":116,"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/pages\/2\/revisions"}],"predecessor-version":[{"id":528,"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/pages\/2\/revisions\/528"}],"wp:attachment":[{"href":"https:\/\/ulyssesdmd.study\/it-it\/wp-json\/wp\/v2\/media?parent=2"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}