{"id":2,"date":"2023-07-09T16:29:35","date_gmt":"2023-07-09T16:29:35","guid":{"rendered":"https:\/\/ulyssesdmd.study\/?page_id=2"},"modified":"2026-05-11T23:36:00","modified_gmt":"2026-05-11T23:36:00","slug":"home","status":"publish","type":"page","link":"https:\/\/ulyssesdmd.study\/uk-en\/","title":{"rendered":"Home"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;HERO SECTION&#8221; _builder_version=&#8221;4.21.0&#8243; background_image=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/sky-sun-birds-bkg.jpg&#8221; background_size=&#8221;custom&#8221; background_position=&#8221;bottom_left&#8221; background_horizontal_offset=&#8221;18%&#8221; background_vertical_offset=&#8221;10%&#8221; custom_padding=&#8221;110px||||false|false&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; background_last_edited=&#8221;on|tablet&#8221; background_size_tablet=&#8221;initial&#8221; background_size_phone=&#8221;initial&#8221; background_image_height_tablet=&#8221;60%&#8221; background_position_tablet=&#8221;bottom_left&#8221; background_horizontal_offset_tablet=&#8221;35%&#8221; background_vertical_offset_tablet=&#8221;20%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_right&#8221; background_blend=&#8221;screen&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;95px||||false|false&#8221; custom_padding_tablet=&#8221;95px||||false|false&#8221; custom_padding_phone=&#8221;40px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; background_enable_image=&#8221;off&#8221; background_blend=&#8221;soft-light&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;53px&#8221; header_letter_spacing=&#8221;0.02em&#8221; header_line_height=&#8221;56px&#8221; custom_margin=&#8221;||12px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; header_font_size_tablet=&#8221;53px&#8221; header_font_size_phone=&#8221;31px&#8221; header_font_size_last_edited=&#8221;on|phone&#8221; header_line_height_tablet=&#8221;56px&#8221; header_line_height_phone=&#8221;33px&#8221; header_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>REACH OUT. JOIN US.<br \/>LET&#8217;S WORK TOGETHER<br \/><span class=\"orange medium\">TO FIGHT DMD.<\/span><\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;||||||||&#8221; text_text_color=&#8221;#1E8C8E&#8221; text_line_height=&#8221;30px&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;54px&#8221; custom_padding=&#8221;||2em||false|false&#8221; custom_padding_tablet=&#8221;||0em||false|false&#8221; custom_padding_phone=&#8221;||0em||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;22px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;30px&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Learn about our Duchenne<br \/>Muscular Dystrophy research study.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding_tablet=&#8221;||0px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/people-hero.png&#8221; alt=&#8221;People&#8221; title_text=&#8221;people-hero&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;STUDY OVERVIEW SECTION&#8221; module_id=&#8221;STUDY-OVERVIEW&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#1E8C8E&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||true|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Study Overview<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;WHAT IS THE ULYSSES STUDY&#8221; 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header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>What is the ULYSSES study about?<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;2_5,3_5&#8243; make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;0px||150px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;88%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>This study is being done to learn more about an investigational drug called givinostat. The study will test its efficacy in reducing muscle decline in people with Duchenne muscular dystrophy (DMD).<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_3_font_size_tablet=&#8221;25px&#8221; header_3_font_size_phone=&#8221;23px&#8221; header_3_font_size_last_edited=&#8221;on|phone&#8221; header_3_line_height_tablet=&#8221;&#8221; header_3_line_height_phone=&#8221;&#8221; header_3_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Learn more about the study by watching our video.<\/h3>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;3_5&#8243; 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custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;HOW DOES GIVINOSTAT WORK&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#6fcaca&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/blobs-bkg.jpg&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_center&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||150px||false|false&#8221; background_color_phone=&#8221;#6fc9c9&#8243; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;41%&#8221; background_vertical_offset_phone=&#8221;0%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; 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header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>How does givinostat work?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>DMD is caused by changes (mutations) in the DMD gene, which contains the instructions for cells to make a protein called dystrophin. Dystrophin is important for muscle health and helps prevent wear and tear on the muscles when you move. Mutations in the DMD gene cause the body to make less dystrophin. Without this protein, muscles can become damaged over time and replaced by scar tissue (fibrosis) and fat. This leads to muscle wasting and weakness.<\/p>\n<p>Givinostat blocks enzymes called histone deacetylases (HDACs), which turn off gene activity and can affect the ability of muscle cells to repair themselves (regenerate). By blocking HDACs, givinostat may reduce muscle fibrosis and wasting and help muscle cells to regenerate.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;TAKING PART SECTION&#8221; module_id=&#8221;TAKING-PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ED7A23&#8243; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||true|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Taking Part in the Study<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHO CAN TAKE PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/globe-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/globe-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;45%&#8221; background_vertical_offset_phone=&#8221;-16%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Who can take part in this study?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;50%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>About 138 boys will take part in the study at research sites all over the world.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_3_font_size_tablet=&#8221;25px&#8221; header_3_font_size_phone=&#8221;23px&#8221; header_3_font_size_last_edited=&#8221;on|phone&#8221; header_3_line_height_tablet=&#8221;&#8221; header_3_line_height_phone=&#8221;&#8221; header_3_line_height_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Eligible participants must:<\/h3>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;61%&#8221; max_width_tablet=&#8221;61%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Be male, aged 9 to 17 years (at the start of the study)<\/li>\n<li>Have a genetic diagnosis of Duchenne muscular dystrophy (DMD)<\/li>\n<li>Be non-ambulant (generally using a wheelchair for mobility)<\/li>\n<li>Be treated on a stable dose of systemic steroids for at least the past 6 months (such as prednisone, prednisolone, or deflazacort)<\/li>\n<li>Have not received any gene therapy treatments for DMD<\/li>\n<li>Have not had exposure to any dystrophin restoration product in the past 6 months (such as Ataluren, Viltepso, Exondys 51, Vyondys 53, Amondys 45)<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;||||||||&#8221; text_text_color=&#8221;#1E8C8E&#8221; text_line_height=&#8221;30px&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;54px&#8221; custom_padding=&#8221;||1em||false|false&#8221; custom_padding_tablet=&#8221;||0em||false|false&#8221; custom_padding_phone=&#8221;||0em||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;22px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;30px&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Medical history and other criteria will be reviewed to determine eligibility.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;HOW DOES THE STUDY WORK&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>How does the study work?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;68%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;95%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>This study lasts about a year and a half and requires about 14 study-related site visits. The study is divided into 3 main parts:<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_font_size=&#8221;20px&#8221; text_line_height=&#8221;24px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"study-chart-container\">\n<div class=\"row-1\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">1<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">SCREENING PERIOD<\/strong><br \/>(up to 1 month \u00b114 days)<\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">Your medical history will be reviewed and tests will be done over 3 visits to see if you can be in the study. Some of the tests include blood draws, heart and lung function tests, and strength\/movement tests.<\/div>\n<\/div>\n<\/div>\n<div class=\"row-2\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">2<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">STUDY TREATMENT<\/strong><br \/>(18 months)<\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">\n<p>If you qualify, you will enter the study treatment period and be assigned at random to one of two study treatments: the investigational drug (givinostat) or placebo (an inactive substance).<\/p>\n<p>&nbsp;<\/p>\n<p>There is a 2 in 3 chance of getting the investigational drug and a 1 in 3 chance of getting placebo. You will take the study treatment twice each day for about 18 months. You and your parent\/guardian will return to the study site about 10 times for additional study tests and procedures.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"row-optional\">\n<div class=\"col-1\">\n<p><strong class=\"title\">OPTIONAL LONG-TERM SAFETY STUDY:<\/strong><\/p>\n<p>If you complete the study treatment period, you will be invited to enrol in a long-term safety study in which you would take givinostat until the treatment becomes commercially available. During the long-term safety study, all participants will receive givinostat, even those who were previously taking placebo.<\/p>\n<\/div>\n<\/div>\n<div class=\"row-3\">\n<div class=\"col-1\">\n<div class=\"col-1-text\">3<\/div>\n<\/div>\n<div class=\"col-2\">\n<div class=\"col-2-text\"><strong class=\"title\">FOLLOW-UP VISIT<\/strong><\/div>\n<\/div>\n<div class=\"col-3\">\n<div class=\"col-3-text\">About 1 month (\u00b17 days) after your last dose of the study drug, you and your parent\/guardian will return to the study site to check on your health.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;WHY JOIN&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/doc-patient-bkg.jpg&#8221; custom_padding_tablet=&#8221;&#8221; custom_padding_phone=&#8221;||250px||false|false&#8221; background_color_phone=&#8221;#eeeeee&#8221; background_last_edited=&#8221;on|phone&#8221; background_enable_color_phone=&#8221;on&#8221; background_image_phone=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/doc-patient-bkg-mobile.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; background_size_phone=&#8221;contain&#8221; background_position_phone=&#8221;bottom_center&#8221; background_horizontal_offset_phone=&#8221;42%&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row make_equal=&#8221;on&#8221; custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;bottom_right&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;100px||100px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Why should I join the study?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>DMD is a rare, progressive, debilitating, and life-threatening condition for which there is a critical need for novel therapies that are effective and well-tolerated in all people with DMD. Being in this clinical study may or may not help your DMD. However, we believe some benefits might include:<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;1.6em&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;57%&#8221; max_width_phone=&#8221;100%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>Research opportunity for non-ambulant people with DMD as not many effective treatments are available<\/li>\n<li>Close monitoring of your health by a professional research team<\/li>\n<li>A chance to contribute to what we know about DMD<\/li>\n<li>A chance to help other people with DMD<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;ARE THERE RISKS&#8221; module_id=&#8221;TAKING-PART&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; background_image=&#8221;https:\/\/ulyssesdmd.study\/uk-en\/wp-content\/uploads\/2023\/07\/orange-fuschia-bkg.jpg&#8221; background_position=&#8221;top_right&#8221; background_vertical_offset=&#8221;50%&#8221; custom_margin=&#8221;||15px||false|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; background_last_edited=&#8221;on|phone&#8221; background_size_tablet=&#8221;custom&#8221; background_image_height_tablet=&#8221;110%&#8221; background_image_height_phone=&#8221;105%&#8221; background_horizontal_offset_tablet=&#8221;15%&#8221; background_horizontal_offset_phone=&#8221;20%&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;75px||75px||false|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;50px||35px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;34px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Are there risks in the study?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;85%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>There may be risks from taking the investigational drug. More information about the possible risks, side effects, discomforts, and inconveniences related to the study is available in the informed consent form and should be discussed with the study doctor.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;75px||75px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;35px||70px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;||||||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;34px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Do I have to be in the study?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;77%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; text_line_height_tablet=&#8221;&#8221; text_line_height_phone=&#8221;&#8221; text_line_height_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>No. Being in a clinical study is completely voluntary. You do not have to join the study. Even if you join the study, you can stop being in the study at any time.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; admin_label=&#8221;ABOUT CLINICAL STUDIES&#8221; module_id=&#8221;ABOUT-CLINICAL-STUDIES&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#75bd43&#8243; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;90%&#8221; custom_padding=&#8221;35px||35px||true|false&#8221; custom_padding_tablet=&#8221;25px||25px||true|false&#8221; custom_padding_phone=&#8221;15px||15px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|||on|||||&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; header_2_font_size=&#8221;35px&#8221; header_2_letter_spacing=&#8221;0.01px&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; custom_margin=&#8221;0px||0px||true|false&#8221; custom_margin_tablet=&#8221;0px||0px||false|false&#8221; custom_margin_phone=&#8221;0px||0px||true|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;25px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>ABOUT CLINICAL STUDIES<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; 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custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;bottom_right&#8221; width_tablet=&#8221;90%&#8221; width_phone=&#8221;90%&#8221; width_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;150px||150px||true|false&#8221; custom_padding_tablet=&#8221;0px||0px||true|false&#8221; custom_padding_phone=&#8221;0px||0px||true|false&#8221; custom_css_main_element=&#8221;align-items:center;&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>What is a clinical research study?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>A research study is designed to help us learn more about medical devices, drugs, or diagnostic tests. Health authorities use the results of research studies to decide if an investigational drug should be made available for use in a particular country.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;90%&#8221; max_width_tablet=&#8221;90%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;1em||||false|false&#8221; header_2_font_size_tablet=&#8221;35px&#8221; header_2_font_size_phone=&#8221;31px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>How are my rights protected?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|300|||||||&#8221; ul_line_height=&#8221;44px&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_text_color=&#8221;#113157&#8243; header_2_font_size=&#8221;35px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#E43C2F&#8221; header_3_font_size=&#8221;25px&#8221; max_width=&#8221;65%&#8221; max_width_tablet=&#8221;83%&#8221; max_width_phone=&#8221;90%&#8221; max_width_last_edited=&#8221;on|phone&#8221; text_font_size_tablet=&#8221;&#8221; text_font_size_phone=&#8221;20px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Every research study is reviewed by an Institutional Review Board (IRB) or Ethics Committee (EC), which helps ensure that the study is conducted safely and that the rights and privacy of study participants are protected. Research studies are conducted by experienced and trained medical professionals who monitor the health of participants throughout the study.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>REACH OUT. JOIN US.LET&#8217;S WORK TOGETHERTO FIGHT DMD.Learn about our DuchenneMuscular Dystrophy research study.Study OverviewWhat is the ULYSSES study about?This study is being done to learn more about an investigational drug called givinostat. The study will test its efficacy in reducing muscle decline in people with Duchenne muscular dystrophy (DMD).Learn more about the study by [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<!-- wp:paragraph -->\r\n<p>This is an example page. It's different from a blog post because it will stay in one place and will show up in your site navigation (in most themes). Most people start with an About page that introduces them to potential site visitors. It might say something like this:<\/p>\r\n<!-- \/wp:paragraph --><!-- wp:quote -->\r\n<blockquote class=\"wp-block-quote\">\r\n<p>Hi there! I'm a bike messenger by day, aspiring actor by night, and this is my website. I live in Los Angeles, have a great dog named Jack, and I like pi\u00f1a coladas. (And gettin' caught in the rain.)<\/p>\r\n<\/blockquote>\r\n<!-- \/wp:quote --><!-- wp:paragraph -->\r\n<p>...or something like this:<\/p>\r\n<!-- \/wp:paragraph --><!-- wp:quote -->\r\n<blockquote class=\"wp-block-quote\">\r\n<p>The XYZ Doohickey Company was founded in 1971, and has been providing quality doohickeys to the public ever since. 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